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Disagreement about health data

The Health Data Committee recommends the establishment of a national platform for health data, under dissent. Completely wrong focus, believes the head of the Norwegian Association for Medical Genetics.

Just before the summer, the Health Data Committee submitted its report to the Ministry of Health and Care Services, where they concluded that Norway should establish a centralized service for Norwegian health data. The idea is that researchers should more easily be able to link health information about each patient from different sources, so that they can work with large combinations of datasets. The data in question is health information that is recorded about us when we visit a doctor and hospital. The committee primarily proposes to link some of the largest registries, which include almost the entire population: the National Register, the Norwegian Patient Register and the Cause of Death Register, as well as socio-economic data from Statistics Norway. In the long term, it is conceivable that the solution will also contain genetic information from hospital tests, and overviews of, for example, abortions, prescriptions and various diseases we have or have had.

Marta Ebbing

Dissent. While the Health Data Committee presented its report in June, the Directorate for e-health's work with the forthcoming Health Analysis Platform was already under way. . .

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tori.aarseth@gmail.com
Aarseth is a political scientist and a regular journalist at Ny Tid.

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